Wednesday, January 20, 2016

Looking Back on This Day in 2010

January 20th will always be a significant day in EZ's Multiple Myeloma history. You can read all about it in my post from 2014 by going to the link here.

I couldn't let this day slip by without reminiscing. January 20, 2010 was when we first met EZ's local oncologist, Dr. Alan Kritz, and began this journey of life with Multiple Myeloma. We hardly knew what was about to hit us then, and it feels good to be six years down the road and looking forward to the future with great hope and expectation. We are so blessed to live in an area where two hospitals do stem cell transplants (Duke and University of North Carolina), and where there are many excellent myeloma specialists available to treat patients. We are thankful NOT to be in an oncologist's office today, but rather at home in front of the fireplace, waiting for some snow flurries to begin falling.

Lucy, our newly adopted English Springer Spaniel


As I think back to a time of deep uncertainty with EZ's cancer diagnosis, job/insurance loss, a 31 day hospitalization, huge financial concerns, radiation, chemotherapy, stem cell transplant, and a scary future, I am reminded that none of this came as a surprise to God. He holds our future in His hands, and He helped us get through each and every day with His strength, not our own. We hardly knew how to put one foot in front of the other, but He loved us. He helped us. People prayed for us. Friends and family supported us. Doctors cared for us. We are grateful. 

EZ's Mr. Clean look
We don't know what the future holds, but we know Who holds the future. We will continue to be educated about all things MM. We will be involved in our Triangle Multiple Myeloma Support Group. We will give to wonderful organizations such as the IMF, MMRF, and LLS, in the hope that research and advances in treatment might continue to improve and prolong the lives of patients. We will pray for a cure. We will live life with hope, and treasure every day. We will try to show love and support to others who are fighting the good fight with MM. We will do this together, hand-in-hand, one step at a time.

Bacardi Beach, Samana Dominican Republic












Please leave a comment if there is any way we can encourage, or be of help to you today.


Sunday, January 17, 2016

Happy New Year 2016!



Greetings! For those of you that may not have heard from us in the past year, can you tell from this picture that life is good? Hope that puts your heart and mind at ease right away. We realize that in the world of unpredictable Multiple Myeloma, not hearing from fellow survivors for a bit can be scary. 

In November of 2015, EZ and I were able to celebrate our 40th anniversary (a month early) in beautiful Samana, Dominican Republic! It was an amazing time away for the two of us, to reflect on all of God's goodness in our marriage, and in Ernie's battle with MM. We took long walks on the beach, snorkled, dined in fine fashion, watched beautiful sunsets, and just enjoyed celebrating love and life.


With EZ's diagnosis six years ago, we were shocked, saddened, devastated, fearful, confused and overwhelmed. But today, we are grateful and full of hope for our future. Our prayer is that others would be encouraged by our journey, and see that there is One bigger than ourselves and our circumstances. Thank you to our family, friends, and church for your prayers and support over the years. 

EZ's M-spike remains at 0, "undetectable". The results of his bloodwork remain stable, as they have all year. He continues to take 10 mg Revlimid daily, with no days off, and has been on this regimen for 5 years now, tolerating it exceptionally well. Yes, he lives with neuropathy, daily sweating, a suppressed immune system, and insomnia, but overall, he can still enjoy life every day!


I can't wait to share more highlights (EZ's deep sea fishing trip to the Bahamas), and lowlights (the passing of his sweet Mom), from 2015. My goal is to blog much more often. We love and appreciate those we have met online, traveling a similar, or dissimilar, journey with MM, and never want to lose touch. There were many times in the past that we never imagined traveling again, or seeing our 40th anniversary, but here we are. If you are facing difficult circumstances, try to keep the faith and hold on to hope for the future. We are proof you might be surprised by all the blessings that await you!