Wow, Big EZ has been through the ringer these past two weeks, all part of re-evaluating everything one year post transplant. Our next appointment at Duke is September 28th, so all test results need to be in by then. Last Tuesday he was subjected to a bone marrow biopsy, blood work, an Aredia infusion, 24 hour urinalysis (peeing into a jug for 24 hours), and 4 re-vaccinations. On Monday of this week, he had dental work, a full skeletal survey, and an MRI. A lot of procedures to have in just two days!
I must say I admire my husband so much for never complaining. I know he lives with a lot of pain every single day. He can't ever sleep through the night. He wakes up stiff and hurting pretty much from head to toe. He can't feel his feet most of the time, but has to just keep walking, hoping they will do what they are supposed to do. He can't sit comfortably which means he can't drive, sit at our dinner table for meals, go out to eat at restaurants, fly, go to the movies, or sit in a pew at church. He can't bend over. He can't tie his shoes or clip his toenails. He can't run.
Yet, he prefers to concentrate on the things he can do and he remains cheerful and positive. He can get down on the floor (very slowly and carefully) to "wrestle" with his grand kids. He can call his parents every day to check on them, re-assure them that he is okay and tell them he loves them. He can be an encouragement to others. He can smile. He can swim. He can walk. He can make others laugh. He can show gratitude. He can work in his basement again on "projects". He can walk without a cane much of the time. He can tell his family how much he loves them. He can give hugs. He can cuddle with the 'Nats' and watch movies or read books and tickle. He can take a trip to Disney World and enjoy it, in spite of not riding on any rides. He can be a blessing to everyone who knows him. He can make me feel so appreciated, taken care of, and loved.
We pray for good results from all the procedures, hopefully showing continued "complete response"...no new bone lesions, no detectable M spike, no compression fractures, no anemia, and no high protein levels. We will update as we hear back from Dr. Kritz, and thank you for the wonderful support you have shown to Big EZ! He feels it, and he deeply appreciates it...so do I!