Greetings! For those of you that may not have heard from us in the past year, can you tell from this picture that life is good? Hope that puts your heart and mind at ease right away. We realize that in the world of unpredictable Multiple Myeloma, not hearing from fellow survivors for a bit can be scary.
In November of 2015, EZ and I were able to celebrate our 40th anniversary (a month early) in beautiful Samana, Dominican Republic! It was an amazing time away for the two of us, to reflect on all of God's goodness in our marriage, and in Ernie's battle with MM. We took long walks on the beach, snorkled, dined in fine fashion, watched beautiful sunsets, and just enjoyed celebrating love and life.
With EZ's diagnosis six years ago, we were shocked, saddened, devastated, fearful, confused and overwhelmed. But today, we are grateful and full of hope for our future. Our prayer is that others would be encouraged by our journey, and see that there is One bigger than ourselves and our circumstances. Thank you to our family, friends, and church for your prayers and support over the years.
EZ's M-spike remains at 0, "undetectable". The results of his bloodwork remain stable, as they have all year. He continues to take 10 mg Revlimid daily, with no days off, and has been on this regimen for 5 years now, tolerating it exceptionally well. Yes, he lives with neuropathy, daily sweating, a suppressed immune system, and insomnia, but overall, he can still enjoy life every day!
I can't wait to share more highlights (EZ's deep sea fishing trip to the Bahamas), and lowlights (the passing of his sweet Mom), from 2015. My goal is to blog much more often. We love and appreciate those we have met online, traveling a similar, or dissimilar, journey with MM, and never want to lose touch. There were many times in the past that we never imagined traveling again, or seeing our 40th anniversary, but here we are. If you are facing difficult circumstances, try to keep the faith and hold on to hope for the future. We are proof you might be surprised by all the blessings that await you!
Linda!!! You made my day with your beautiful update! Just looooove your happy pictures with you and EZ on vacay enjoying beautiful surroundings for your anniversary!!! Just beautiful in every aspect!!! So very very happy for you and EZ! And wow! Zero M spike issues! He's a miracle! Glad you mentioned his Rev 10mg without a break maintenance. So wonderful he is tolerating Rev so well, and you guys can get out and about and travel and have a life with your beautiful family!!! I am so thrilled for EZ! Give him a hug of support from me, and hugs to you Linda! Thank you for updating us! xoxo
ReplyDeleteThank you Julie! I've been away for too long and decided to catch up on my blog reading and start some more writing today. Dominican was so wonderful...our first all-inclusive, on a tropical island called Cayo Levantado, with nothing but the resort and the beach! So happy to read that you are really responding wonderfully to Krypolis! What a great start to the new year! I will be sure to give EZ a big hug of support from you! Thanks for the comment!
DeleteSo Glad you had a great holiday, and that EZ is doing well!
ReplyDeleteThank you so much Charl! From what I read, you too are doing well, and that makes us glad! Blessings to you in this new year!
ReplyDeleteI can't believe it's been 6 years! God is good. All the time. Love you guys.
ReplyDeleteI am so happy to read your beautiful and praiseworthy update of yourself, EZ and family. You are experiencing the wonderful grace of God in such a special way. For all things God works for good to those who love Him. May 2016 brings more days of abundant blessings. Glad that revlimid is working well and keeping the m-spike at 0.
ReplyDeleteAfter reading your blog, I think I need to update mine too! Keep writing..
Hi Linda, I was wondering you and EZ are doing? Kind Regards, Charl
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