Wednesday, August 25th, will forever be special to us...it was Ernie's Day Of Transplant (DOT), or 2nd birthday as the nurses like to call it! 4 million of his healthy stem cells were thawed and put into two separate syringes for infusion through his Hickman catheter.
What joy filled our hearts as the reality of a new beginning sunk in. The Melphalan chemotherapy which he received on Tuesday kills, but the stem cells given Wednesday rebuild, giving Ernie a clean start with healthy, normal, new blood cells.
On a lighter note, one of the side effects of stem cell infusion is a strange odor emitted by the patient. This comes from the preservative used when they freeze the cells. The odd thing about it is that the patient can't smell it! We were told that some believe it resembles the smell of canned corn and BOY WERE THEY RIGHT!
I couldn't detect a smell until we were in the car heading back to the apartment, and from then on there was no getting away from it. There could be worse smells for sure, but what made this so bad for me is that it is the one food I still can't eat because I got sick on it when I was expecting Tara. Yes, it happened almost 30 years ago and woah did it bring back memories. It seemed to be pouring out of every pore in Ernie's body and he couldn't smell a thing! The whole apartment smelled like canned corn and burning a candle for hours didn't do a thing to change it. We headed to bed and I prayed it would be better the next morning and...it was! Barely detectable now. Just a fun fact about stem cell transplant that I sure won't forget.
Thank you all so much for the many prayers you have lifted up for Ernie throughout this important week. His body has handled the whole process amazingly well and we are so grateful. Fatigue is the main symptom he is feeling right now, and that is totally expected, but he has had little to no nausea...a huge answer to prayer!
Creamed corn of all things. You're right though there could be alot worse things to have had it smell like. HAPPY BIRTHDAY ERNIE!! so happy that the possibilities of how you could have felt from all of this was not so bad. Amen and Amen. We love you and can't wait to keep hearing all the good news. Ken and RuthReplyDelete
A literally laughed out loud! Still chuckling! Some happy to hear about the little to no nausea! That is an awful feeling. How about the mouth sores?ReplyDelete
So glad everything is going so smoothly and the canned corn was cracking me up! Love you daddy!ReplyDelete
I bet Big E was just cracking up too.ReplyDelete
Mr. Ernie is always smiling! Canned Corn...who would have thought? Love you guys!ReplyDelete
Yes, 8/25- what a wonderful day!!!! Happy 2nd birthday Dad! So proud of you for always smiling, for being strong enough to get to this point, and for always being such a perseverant fighter. We'll take you...creamed corn smelling and all. Maybe we'll just need to change your name to "Big Corn!" Ha ha ha. Love you!ReplyDelete
Before Big EZ it was Big Dog...now he can be known as Big Corn Dog!ReplyDelete
It appears that I am getting way too much help with my nickname. I believe we will stick with BIG EZ. Thank you for all the prayers. Each of you is such an encouragement to me. May the Lord bless you today as richly as you have blessed me. PTL!ReplyDelete
We'll just call him "Kernel" Baker! :O) So happy things are going well. YAY!! God!ReplyDelete